Help us accelerate Telomere Biology Disorder research! image

Help us accelerate Telomere Biology Disorder research!

Start a fundraiser to move research forward


$10,349 towards $40,000

25 75 U


Towards Our Goal






Recurring Donors

Team Telomere’s MDBR Team started as Team Josh’s DCO Riders 2015, in honor of Joshua Friedman. Josh passed away in 2011 from Dyskeratosis Congenita (DC), a telomere biology disorder. Josh lived a full and beautiful life and touched many people throughout. Josh’s lasting legacy is a gift to our community as his story has helped raise over $520,000 in research.

We have partnered with Penn’s Orphan Disease Center since 2014 to excel our ability to fund quality science for Telomere Biology Disorders. Our goal for this year is to raise $40,000 for TBD research. Of our total, $25,000 will go toward the Million Dollar Bike Ride and will be matched dollar for dollar by the Orphan Disease Center.

We are asking our community to rally their friends, family, and networks to support accelerating TBD research. By creating a fundraiser, you will accelerate the medical and scientific community’s research in finding causes, effective treatments, and a path towards a cure.

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