Julie Clark's Fundraiser
Help us accelerate Telomere Biology Disorder research!
Be part of finding causes, effective treatments, and a path towards a cure
Phyllis Shaffer
"For our grandson Josh! We are so proud of you!"
$50
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Sasha Rondy
I donated in support of this campaign.
$25
Madison Cresta
"For the strongest man I know. Josh is so amazing!!"
$10
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Julie Clark
"For our brave son, Josh who never gives up! We are so proud of you!"
$100
In 2007, our son Josh was diagnosed with Dyskeratosis Congenita, a Telomere Biology Disorder. So much progress has been made through research in the past years allowing our son to have a successful bone marrow transplant in 2012 and a recent liver transplant in March but further research is needed to find a cure for this terrible disease!
Our Team Telomere first participated in the MDBR in 2015 in honor of Joshua Friedman who passed away in 2011 from Dyskeratosis Congenita. Josh lived a full and beautiful life and touched many people throughout. Josh’s lasting legacy is a gift to our community as his story has helped raise over $520,000 in research.