Jena Robertson's Fundraiser
Help us accelerate Telomere Biology Disorder research!
Be part of finding causes, effective treatments, and a path towards a cure
Zachary Robertson
"Go Team Telomere!"
$25
Team Telomere’s MDBR Team started as Team Josh’s DCO Riders 2015, in honor of Joshua Friedman. Josh passed away in 2011 from Dyskeratosis Congenita (DC), a telomere biology disorder. Josh lived a full and beautiful life and touched many people throughout. Josh’s lasting legacy is a gift to our community as his story has helped raise over $520,000 in research.
We have partnered with Penn’s Orphan Disease Center since 2014 to excel our ability to fund quality science for Telomere Biology Disorders. Our goal this year is to raise $40,000 that will be matched dollar for dollar by the Orphan Disease Center.
Our daughter Lorelei relies on the advocacy of others (Like Team Telomere) to receive the best care and treatments possible. With your help, her future looks brighter. With your help, there IS a future for her and for others in our community affected by Telomere Biology Disorders.
Thank you for donating!