Jeni Colter's Fundraiser
Help us accelerate Telomere Biology Disorder research!
Promising treatments are on the horizon
In 2015 Meg was diagnosed with a Telomere Biology Disorder (Dyskeratosis Congenita). In 2015 Team Telomere’s first MDBR Team (riding in honor of Joshua Friedman) funded Team Telomere’s first research grant. In the nine years since, Team Telomere has awarded over $520,000 in research grants. Grants that focus on developing treatments for this very rare condition.
So much progress has been made in the past few years! I genuinely believe Meg will see a treatment for TBD in our lifetime. Treatment options that will radically improve outcomes and the quality of life for all people living with a TBD.
Momentum is on our side. Your contribution ensures this promising research will continue.
We have partnered with Penn’s Orphan Disease Center since 2014 to excel our ability to fund quality science for Telomere Biology Disorders. Our goal this year is to raise $40,000 that will be matched dollar for dollar by the Orphan Disease Center.