Haley Holmes's Fundraiser
Help us accelerate Telomere Biology Disorder research!
Be part of finding causes, effective treatments, and a path towards a cure
Heather Davies
"My gorgeous grandson."
$200
This is a cause close to my heart as you all know, Hamish was diagnosed with Dyskeratosis Congenita in 2019.
Team Telomere’s MDBR Team started as Team Josh’s DCO Riders 2015, in honor of Joshua Friedman. Josh passed away in 2011 from Dyskeratosis Congenita (DC), a telomere biology disorder. Josh lived a full and beautiful life and touched many people throughout. Josh’s lasting legacy is a gift to our community as his story has helped raise over $520,000 in research.
We have partnered with Penn’s Orphan Disease Center since 2014 to excel our ability to fund quality science for Telomere Biology Disorders. Our goal this year is to raise $40,000 that will be matched dollar for dollar by the Orphan Disease Center.
We are asking our community to rally their friends, family, and networks to support accelerating TBD research. By creating a fundraiser, you will accelerate the medical and scientific community’s research in finding causes, effective treatments, and a path towards a cure.