Michelle Murray's Fundraiser
Help us accelerate Telomere Biology Disorder research!
Be part of finding causes, effective treatments, and a path towards a cure
I'm participating in this fundraiser to honor the lives of my dad, Dean and my sister, Lisa who were both impacted by a telomere biology disorder (TBD). My sister Lisa impacted the lives of many. She was passionate about family, friends, the Team Telomere organization and the people affected by TBD. I along with many others miss her smile, bright light and energy as well as that of my dad's. Lisa served on the board of directors and was a founding member of Team Telomere. In 2019, Team Telomere honored her with their Excellence in Community Service award. As I've learned more about Team Telomere, I've been impressed at the work they do to support those with TBD as well as advocate for continuing education and clinical research for those patients impacted. My husband Phil and I will be riding remotely in Oregon on June 8 and would welcome any friends or family that want to join us. Please consider a donation to sponsor me in this worthy fundraising.
Team Telomere’s Million Dollar Bike Ride Team started as Team Josh’s DCO Riders 2015, in honor of Joshua Friedman. Josh passed away in 2011 from Dyskeratosis Congenita (DC), a telomere biology disorder. Josh lived a full and beautiful life and touched many people throughout. Josh’s lasting legacy is a gift to our community as his story has helped raise over $520,000 in research. Lisa and her husband Rich participated in this ride and fundraising for several years.
Team Telomere has partnered with Penn’s Orphan Disease Center since 2014 to excel their ability to fund quality science for Telomere Biology Disorders. Their goal this year is to raise $40,000 that will be matched dollar for dollar by the Orphan Disease Center.