Bruce Friedman's Fundraiser
Help us accelerate Telomere Biology Disorder research!
Be part of finding causes, effective treatments, and a path towards a cure
Dear Friends and Family - This June 24th we'll be celebrating Josh's 30th birthday, hard to believe! Josh lived an amazing life for 17 years before he passed away in 2011 from Dyskeratosis Congentia, a telomere biology disorder.
Please join our family in celebrating Josh's amazing and impactful life with a donation in his memory. We started this team in 2015, in Josh's honor and since then it's grown with many more families participating for those who live with or have passed from a TBD. To date our community has raised over $520,000 in research.
Those who will be in the Philadelphia area on June 8th, please join us in the ride. Whether you ride or not, Pattie and I invite you to our house afterwards for some beverages and Josh Superman birthday cake.
Your donations are greatly appreciated as we look to better the lives for those coping, and some day find a cure for Dyskeratosis Congenita and other telomere disorders.