Michelle Howlett

Michelle Howlett's Fundraiser

Help us accelerate Telomere Biology Disorder research! image

Help us accelerate Telomere Biology Disorder research!

Be part of finding causes, effective treatments, and a path towards a cure

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$50 towards $200

Team Telomere’s MDBR Team started as Team Josh’s DCO Riders 2015, in honor of Joshua Friedman. Josh passed away in 2011 from Dyskeratosis Congenita (DC), a telomere biology disorder. Josh lived a full and beautiful life and touched many people throughout. Josh’s lasting legacy is a gift to our community as his story has helped raise over $520,000 in research.
Unfortunately, Josh passed away before Jane received her Dyskeratosis Congenita diagnosis, however, Jane and I have had the privilege of meeting his outstanding parents. This year we can’t attend the Million Dollar Bike Ride as we need to be home so Jane can prep for some testing she will have done that Monday at CHOP. Any donation is greatly appreciated and for this event matched!!!

We have partnered with Penn’s Orphan Disease Center since 2014 to excel our ability to fund quality science for Telomere Biology Disorders. Our goal this year is to raise $40,000 that will be matched dollar for dollar by the Orphan Disease Center.
We are asking our community to rally their friends, family, and networks to support accelerating TBD research. By creating a fundraiser, you will accelerate the medical and scientific community’s research in finding causes, effective treatments, and a path towards a cure.