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Melissa Isaac Delarye's Fundraiser
Help Us Share Good News This Giving Tuesday!
Donate to benefit families impacted by Telomere Biology Disorders today.
This Giving Tuesday, we’re launching The Good News Hour, a campaign to celebrate the progress we’ve made together and to power what’s next.
In 2024 my son Logan, daughter Alexa, and myself were all diagnosed with a Telomere Biology Disorder. With the help of the Team Telomere Community, many doctors, specialists, scientists, and researchers, we have been provided with care and information to help us navigate and better understand this rare disease. Because of Team Telomere we were able to attend a Community Summit this past year and meet others who are struggling with the same issues and searching for answers and support. Research was recently performed on my family's specific gene mutations and I was able to travel to Boston for a Medical Consult. I am happy to say that we are all currently stable. This is all Good News and all Thanks to Team Telomere!
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