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Jen Chaney's Fundraiser
Accelerate Telomere Biology Disorder Research
Donate today to drive TBD research forward!
Elizabeth Hayes
I donated in support of this campaign.
$200
A supporter of Jen Chaney
I donated in support of this campaign.
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Arch Campbell
"Best wishes Jen and family "
$75
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Sinead Quinn
"I'd like to know how long you will be on your Peloton! Maybe I'll ride in Rock Creek out of solidarity."
$50
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Jacqueline Demitz
"Go Jen! Honored to support you! ~ the "
$100
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Tiffany Marlowe
I donated in support of this campaign.
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Barbara Berlin
"Go, Jen, go! "
$50
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Nell Minow
"Happy to support this important work."
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Elizabeth Nelson
I donated in support of this campaign.
$25
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Travis Hopson
I donated in support of this campaign.
$10
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Damon Lindelof
"CONGRATS ON GRADUATING, LUKE!"
$1,000
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Hoda Moustafa
"Because I loved your note about seeing Luke graduate :) "
$100
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Doug Herzog
I donated in support of this campaign.
$200
As many of you know, my son Luke has a Telomere Biology Disorder. He has been in bone marrow failure for several years but his blood counts, while lower than they should be, are close enough to normal to not cause too many issues. He is seen annually at NIH and undergoes multiple tests to make sure he is still doing well.
Luke is graduating from high school in less than two weeks. This is a milestone for anyone, obviously. But I can remember when he was first diagnosed eight or nine years ago, and I was so distraught that I prayed that he would make it through high school. He has, and I believe he has a long life ahead of him.
But that's only because of scientific research into treatments and potential cures for people with TBDs. Yeah, I'm getting to the part where I ask for money. But first, let me explain more about what a TBD is.
Team Telomere, the wonderful organization that supports people with TBDs, is participating once again in the Million Dollar Bike Ride through Penn Medicine’s Orphan Disease Center, where every dollar raised will be matched to fund a pilot research grant related to TBDs. On June 14th, I will be riding — fine, Peloton-ing — with my TBD community to celebrate the funds we've raised.
Our goal for this year is to generate $40,000 toward that pilot research grant.
If you can make even a small donation toward that goal, it would mean a great deal. Thanks for your support, for TBD research and for my soon-to-be high school graduate.