Sarah and Haley Neuenfeldt

Sarah and Haley Neuenfeldt's Fundraiser

Accelerate Telomere Biology Disorder Research image

Accelerate Telomere Biology Disorder Research

Join us and make a difference, donate today to drive TBD research forward!

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$465 towards $750

Telomere Biology Disorders (TBDs) are a group of rare conditions that can affect the body in many ways, including causing bone marrow failure, pulmonary fibrosis, liver disease, cancer, and other conditions. There is presently limited research funding for TBDs. Funding TBD research is critical to moving toward improved treatments and cures.

Team Telomere is part of the Million Dollar Bike Ride through Penn Medicine’s Orphan Disease Center. To date, they have raised over $580,000 for TBD research through this effort. From supporting TBD-specific clinical trials, investigating potential treatments, and better understanding the TBD disease process, the TBD field has been shaped by funding this impactful research.

This year, we are raising funds in honor of our Uncle Tom, who passed away in October 2022 from pulmonary fibrosis caused by a Telomere Biology Disorder.

Our uncle was funny, generous, and kind. He loved music, cooking, good wine, and his family, and we are raising money in hopes that new research can help find a cure for this and other rare diseases.
Thank you so much for your support and for those who have already donated!