Sarah and Haley Neuenfeldt

Sarah and Haley Neuenfeldt's Fundraiser

Accelerate Telomere Biology Disorder Research image

Accelerate Telomere Biology Disorder Research

Join me and make a difference, donate today to drive TBD research forward!

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$30 towards $500

Telomere Biology Disorders (TBDs) are a group of rare conditions that can affect the body in many ways, including causing bone marrow failure, pulmonary fibrosis, liver disease, cancer, and other conditions. There is presently limited research funding for TBDs. Funding TBD research is critical to moving toward improved treatments and cures.

Team Telomere is part of the Million Dollar Bike Ride through Penn Medicine’s Orphan Disease Center. To date, they have raised over $580,000 for TBD research through this effort. From supporting TBD-specific clinical trials, investigating potential treatments, and better understanding the TBD disease process, the TBD field has been shaped by funding this impactful research.

I am riding for research this June to raise money for vital Telomere Biology Disorder (TBD) research. Team Telomere is part of the Million Dollar Bike Ride through Penn Medicine’s Orphan Disease Center, where every dollar raised is matched to fund a pilot research grant. On June 14th, I will be riding in celebration with my TBD community for all of the funds we have raised.

Our goal for this year is to raise $40,000 to directly fund a pilot research grant.

Will you help me in accelerating TBD research and reaching my fundraising goal with a donation today?