Alona Michelle Waldrop-Kelly's Fundraiser
Help us accelerate Telomere Biology Disorder research!
Be part of finding causes, effective treatments, and a path towards a cure
Alona Waldrop
"Love from Nana"
$100
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Terri Johnson
I donated in support of this campaign.
$50
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Kerri White
"Ride strong.."
$100
My son was the first in my family to be diagnosed with Dyskeratosis Congenita (DC), a rare telomere biology disorder. It has explained medical mysteries, such as my father dying at 68 and my sister at 51 from cancer. After genetic testing, my daughter and I, also, have DC, but with less severe complications. We want to acknowledge the folks that came before us, giving their time and treasure to research genetics, bone marrow failures, liver and pulmonary fibrosis disorders. Now we know about quality of life options for DC. Would love to give back with a love offering in 2024. It's my honor to raise funds to continue research.